Today marks five years since my husband had his life saving liver transplant…five years….can’t believe how quickly they have flown. Especially as the years leading up to that day went so slowly…the fourteen months of being on the waiting list seemed to stretch for a life time. This day five years ago started like many […]
autoimmune disease
DonateLife Thank You Day 2016
By Sarah in Liver Transplant, Organ Donation Tags: autoimmune disease, donatelife, DonateLife Thank You Day, Liver Transplant, organ donation, PSC
Today is DonateLife Thank You Day (20th November 2016). This is a day to say thank you to all the donors and their loved ones for giving the gift of life…and it is a day that is very important to us. Because organ donation saved my husband’s life…it is as simple as that… If a […]
DonateLife Week 2016 – Organ Donation in the News
By Sarah in Liver Transplant, Organ Donation Tags: autoimmune disease, donatelife, DonateLife Week 2016, Liver Transplant, organ donation, PSC
One of the unexpected benefits of going on this roller coaster transplant journey has been the wonderful opportunities that have been presented to us. Neither of us were ever fond of public speaking, but as time has passed, we now love telling our story and sharing just how life changing organ donation can be. This […]
Four Year Post Liver Transplant
By Sarah in Liver Transplant, Organ Donation 2 Comments Tags: autoimmune disease, four years post liver transplant, Liver Transplant, organ donation, PSC, transplant
Today, we woke up extra early and headed out in the dark along a familiar route to hospital. The journey was for nothing major…just a regular checkup appointment at the Liver Transplant Unit for my husband. However, this day has very special meaning…four years ago we also got up early and made the journey to […]
A Very Happy Birthday…Another Milestone after Transplant
By Sarah in General, Liver Transplant, Organ Donation Tags: autoimmune disease, happy birthday, Liver Transplant, organ donation, PSC
Today marks another milestone…it’s my husband’s birthday. It is significant because it is another year that he wouldn’t have seen if he hadn’t had a much needed liver transplant. He barely made it to his 40th birthday….he felt and looked terrible. Very jaundiced and so tired all the time, his body was slowly giving in […]
Looking Back – Waiting for a Liver Transplant
By Sarah in Liver Transplant, Organ Donation Tags: autoimmune disease, donatelife, Liver Transplant, organ donation, PSC
A “memory” from about four years ago popped up on my Facebook feed recently…I had written how I was so hoping my husband would get a new liver for his birthday, which is in a few days. Although my words didn’t portray it, I remember how worried I was back then…and scared…frustrated. He had been […]
Living with Primary Sclerosing Cholangitis
By Sarah in General, Health, Liver Transplant Tags: autoimmune disease, liver disease, Liver Transplant, Primary Sclerosing Cholangitis, PSC
Please note: this post is about our experience with PSC and should not be a substitute for health and medical advice from a qualified health professional We are often amazed at how many people do not know the important role that their liver plays in keeping them alive and well. Everyone knows about hearts, lungs, […]
Talking about Organ Donation
By Sarah in Liver Transplant, Organ Donation Tags: autoimmune disease, donatelife, liver trasnplant, organ donation, PSC
We did our last scheduled talk at a Melbourne boys school today…we have done five talks in total at this school, meaning approx 1000 boys and their teachers have heard about the importance of organ donation and my husband’s liver transplant journey. Since he had his transplant, we have done quite a few talks, but […]